Wednesday's Course of Action

Aidan and big brother Zack getting haircuts

Aidan was unresponsive to the IVIG treatments.  His blood pressure and heart rate were extremely elevated, this lead doctors to believe that there may be pressure on his brain as a result of excess fluid.  A shunt was considered to alleviate the pressure; however it is no longer a consideration after the additional spinal tap and CT scan yesterday.  His CT Scan was not impressive in the grey and white matter, these are subsets of peripheral nerves surrounding the CNS (Central Nervous System).  This is not a 'goal standard' test for diagnosis, but was the only option because his vitals and current condition wouldn't allow for the lengthy MRI procedure. 

Aidan started plasmapheresis therapy yesterday, which is akin to dialysis (in method), in that it removes his blood, separates the white/red blood cells, platelets; as well as plasma and returns it to his body adding healthy antibodies and removing harmful ones.  This is done via a femoral artery catheter (upper thigh).  It's a double pronged catheter, one side removes the blood, the other returns it.  The procedure was very risky because Aidan's veins are small and there was an inherent risk of bursting the vein.  However, the procedure was successful. Because of the plasmapheresis therapy another machine was required bedside, therefore he had to be moved to a larger room to accommodate for the equipment.  So, now he has the corner suite. 

The ultimate goal is to build new antibodies and reduce the autoimmune response his body is having to the virus. An autoimmune response is where the body's immune system attacks itself. We are waiting for movement in his arms and legs as a marker of success. 

Today we hope to receive the results from the CDC (Center for Disease Control), because he is a pediatric patient his labs were expedited.  His panel include: West Nile, Rocky Mountain Spotted Fever and Botulism. 

We also hope that Aidan can withstand another MRI today on his brain, neck and spine.  Each test, combined with the multiple therapies helps to better define/clarify a diagnosis. 

VISITING
We are so grateful for all of your emails, texts, phone calls and visits.  It's times like these where you are truly blessed with loving friends and family.  Aidan's condition changes hourly, and while we enjoy your warm faces, it would be optimal if you could reach out to us prior to your arrival.  Aidan is so lucky to have all of you, but at times many people may come at once and he doesn't get the benefit of a quiet, gentle bedside calling. 

Keep Aidan in your prayers.