Active Aidan
Great News! Aidan has been more responsive today than any other day since he’s been admitted.
Today he started physical therapy (PT), to keep his range of motion. During PT he moved his right arm, he picked it up and he moved it a few inches on his own. When his left arm was moved by the Physical Therapist he grimaced somewhat and appeared to be in discomfort. When she pushed on his shoulder, he pushed back up.
It was an active day and at this hour is likely exhausted with all hard work
His HR & BP are still very high. He still continues to receive meds to relax him, however all of his reactions today are a sign he's awake, but in discomfort. While we don't want him to be in pain the fact that he feels things makes us happy.
Since he can hear you speaking, we find he gets agitated probably becasue he's frustrated he can't communicate. Aidan never liked when you speak about him when's he's within earshot, even when telling a funny story or when you were proud of him. So, we try to address him when speaking about him. Otherwise we sit quietly with lights dim. Since he hasn't been outside for 10 days his eyes are sensitive to daylight or bright light.
He responds to direct questions by nodding Yes or No.
The RN today asked him would he would like her to move his legs? He shook his head yes. After moving them she then asked "is that better"? He shook his head no. Then she asked "would you like us to move your arms"? He responded by shaking his head yes. She then asked "is that better"? He shook his head 'no".
Its an encouraging day but it's still a long road ahead. For us, its a combination of tears of joy and tears of sadness knowing he wants to communicate and cannot.
His 2nd MRI is only 1/3 complete, but the Specialists feel they got what they needed at this time in order to rule out to ADEM as a diagnosis, so we'll be pursuing treatment for GBS.
Still continuing plasampheresis, he ffinishes tomorrow. On Monday we will consult the MD's to determine whether plasmapheresis or IVIG is the next course of action.
All of the prayers are being heard - please continue to pray.
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