He continues to be agitated and frustrated when he is rolled over. They have to bolus dose him; but overall his levels have been lowered. Lowered the vent to 20 and he did well. He should have had PT today but they did not show; it'll be addressed tomorrow.
His eyes are opening better. It looked like he made fist today. They are going to restart the plasmapheresis tomorrow; we're awaiting for the Pediatric Neurologist from CHOP (Children's Hospital of Philadelphia) to consult with our MD's.
Met with a Representative from Children's Specialized Hospital (in New Brunswick, NJ) today; we're going to visit there soon. Only 60 beds at this hospital and now Aidan is on the list, it may be an option to go from the PICU directly to CSH. They have so many services available from occupational speech therapy to psychological therapy to swimming. He will even be tutored there for school.
We are continuing to remain cautiously optimistic; and while these are positive signs were a long way from seeing the Aidan we knew before.
Your outpouring continues to touch us. Even his T-ball team reached out for him; from children to adults everyone is chipping in and we really appreciate it. College friends, teachers, neighbors, our Parish Priest, you name it, they are all coming to support Aidan and his family.
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