We are grateful for this past year and Aidan's recovery. Just a few weeks ago we passed the one year mark from the day our lives changed. So much has happened and our gratitude continues for the blessing of Aidan's health.
Life changing events happen everyday to people. I can truly say one year later I am changed. Focusing on today and the here and now allows me to be in the moment with my family, friends and life. For that I am grateful. It allows me to hug the kids tightly, love everyone more deeply and feel a sense of relief not to worry. Worry is wasted... investing that energy in today is much more rewarding!
Aidan worked hard through physical therapy. He and Zack had a month of swimming lessons which not only improved their swimming abilities but no doubt strentghened Aidan's dorsiflexion movements which is where he has some residual weakness. This is the movement such as when you pedal a bicycle. He has received tutoring over the summer to bring him up to speed for 2nd grade. Against the school's recommendation we advanced Aidan to 2nd grade. An independent analysis told us he would do well with tutoring and be able to catch up. This was far better than the psychological effects of holding him back after all he had been through. We also consulted a psychologist who urged us to move him ahead and supported him through the summer and still for his anger for the challenges he faced.
Today he is more like his old self doing silly things, giggling, less angry or quick to be frustrated, enjoying his brother and school AND he is playing soccer! His first game Aidan had an assist on goal!!! He falls a little more than the others but like he's been doing - HE GETS UP and keeps trying! It was a blessing to see him running up and down the field!
Next Sat Oct 15th Aidan, his brother Zack and I are walking in a walk for the Foster and Adoptive Family Services Foundation at NJIT in Newark. It's only a 5k and we have named our team "AIDAN'S ANGELS UNITE". Come join our team. www. fafsfoundation.org We are dedicating our walk and fundraising efforts to abused and neglected children in NJ in celebration of Aidan's blessing of health.
Thank you again to all of you for your prayers, love and support! Stay tuned because the official foundation will be coming- an opportunity to help other families in need when their children are ill. It's a goal that we will soon realize. We know the importance of having a support system- WE HAD YOU! Thank you!!
Kim, Taylor, Zack and Aidan
Tuesday, October 4, 2011
Thursday, January 27, 2011
News Article Today in the Randolph Reporter
Randolph 6-year-old continues recovery from rare illness
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Posted: Wednesday, January 26, 2011 12:34 pm
Randolph 6-year-old continues recovery from rare illness By Neil Paley, Contributing Writer Recorder Community Newspapers 0 comments
RANDOLPH TWP. - The miracle is almost complete.
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Aidan Saigh, the 6-year-old first grader at the Shongum School, has been back in Suzanne Kessler's class since Nov. 15. And as the days go forward, there's ever less evidence of the Guillian-Barré syndrome that almost took his life on the first day of school, last Sept. 7.
Kim Luthy, Aidan's mother, was just overwhelmed at the support she received from friends and even perfect strangers at a benefit held last Nov. 13 at the Elks Club in the Lake Mohawk section of Sparta, where over 225 people opened their hearts to help out paying the expenses involved in Aidan's hospitalization. ''There were people who showed up who never knew about Aidan,'' said a grateful Luthy.
''He was just happy all these people were reaching out,'' Luthy continued. ''
“A year of tremendous challenges are no match for the power of gratitude. You plan your life a certain way and then life has a way of changing that plan. You focus on your priorities, which for me is my family and providing a life that includes security, love and growth. Sometimes a series of events puts a clog in that plan and you have a choice. A choice to buckle and retreat or to forge ahead and conquer life with passion and gratitude.''
Luthy marveled at the collection of people from different walks of life that became a celebration of Aidan's young life. ''There were bus drivers, a woman at the dog pound,'' she enumerated. ''It became this incredible outreach and concern. People donated their time. From strangers to people that coach in T-ball. Good things happen to good people. We're so grateful.''
Luthy saw acts of graciousness and devotion that she never imagined.''We had plans for doing a silent auction,'' she said, ''We had items donated by different celebrities, business owners and hotels. There was such love and generosity. Aidan was the guest of honor. We didn't know what was going to happen. It was a fabulous, fabulous night. It went from 6 o'clock at night to 2:30 in the morning.''
But it really goes to the kind of person Kim is and the devoted mother she is.
''What I try to teach my kids (her other two children are Taylor and Zack) is when you go through life, you give out one thing and it comes back 10-fold,'' she said. ''Resolutions typically are temporary, but gratitude is permanent.''
Luthy reports that Aidan is currently about 90 percent recovered from the deadly virus and is on the road to walking normally and being able to do anything any 6-year-old takes for granted. It's almost as if Aidan had to start from the beginning and relearn how to use his body.
''He learned how to crawl on Oct. 3 and learned how to walk on Oct. 11,'' Kim said. ''He was talking, but it took him a while to crawl and sit up.
''We had a chart we kept on how he improved from the first day. By the time he left Children's Specialized Hospital in New Brunswick (on Nov. 10), he was running with a walker.''
And Luthy knew it was time when Aidan said he wanted to go home and that he missed his friends and family. ''He went home with a walker,'' Kim continued. ''It was more of an issue of his stamina.''
What remains an issue with Aidan is that the nerves in his feet still have to regenerate, which is the way recovery in the human body works. When Aidan returned to school with a walker, he quickly discarded it. Aidan just wanted to be like his classmates. ''The issue that remains is his feet,'' Kim said, offering that he's still getting therapy.
''It's hard to convince a 6-year-old that he's lucky to be alive,'' Luthy said. ''It has not been without tears or frustration. He wants to be back to normal. He's pushing himself to get to where he was before.''
His doctors, Kim says, are amazed that Aidan was well above the curve in his recovery.
But still, there must be caution, as Aidan still has asthma and allergies and must be extremely cautious in some other areas. ''He can never get a flu shot again,'' Luthy explained, noting that the egg in the vaccination could cause an allegeric reaction. ''We're vigilant and we're concerned. There's a slight chance that it (the syndrome) could reoccur, we have to avoid flu shots. But we don't live in a bubble and you can only do the best you can.''
While Aidan was still a patient at Children's Specialized Hospital, he had many special people wishing him well, including Suzanne Kessler, who brought him some homework assignments. ''She showed up at the hospital a couple of times,'' Luthy said. ''She only had him one day. She's been truly an advocate for Aidan's education. I'm really very pleased with her.''
Over a month after being released from the hospital, Aidan wanted to give something back, so he went back to the hospital to visit the many friends he'd made in his stay there.
''I really felt grateful, because not everyone there gets better,'' Kim said.
After Aidan returned home, Kim noticed that the experience had resulted in maturity beyond his years. "I said to somebody, he's changed,'' she said. ''When something like that happens in your life, you change. I'm hoping the real Aidan shows himself soon. I want to hear him laugh.''
But that young caring 6-year-old may have reappeared quicker than Kim expected. It may have been when a group gave Kim and her family what you might call a faith-based gift instead of holding a holiday party. The gift was a result of that group taking up a collection.
''That's the first time I saw Aidan happy and jovial,'' she said.
''Things like this keep reaffirming our faith in humanity. Destiny is a combination of hard work and luck. If you surround yourself with positive people, how can you fail?''
Kim Luthy offered a special thank you to all that have offered support to Aidan and his family.
''We know all too well that your health is by far the most important factor in all of your plans because without it you are immobilized to implement all that is ahead of you. When Aidan's health turned for the worse in the course of an overnight we forged ahead. We became engulfed in the now and like you've heard took one day at a time. In the course of those days, we would juggle the immediate testing, assessment of the problem and steps to get us to the next day. All along having to maintain our other children's needs, which included the basic care, schooling, supervision, homework and emotional support.”
''All of this would not have been manageable let alone possible without the support of our family, friends and community. You think as you're plugging along in life to do the simple things you learned in Kindergarten such as treat others the way you want to be treated, say please and thank you (as often as you can) and give to others less fortunate at the time whatever their circumstances. You do these because it's what's right.”
''We never imagined the response we would have received when this happened to us would be so tremendous. You know you are loved by those closest to you and you know people greet you with kindness, but you just don't know until something like Aidan's illness to what extent and to what distance you've touched others enough for them to want to help you. Well, if you're 'fortunate' enough to ever have the opportunity, you'll be feeling the gratitude we feel today.”
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Posted: Wednesday, January 26, 2011 12:34 pm
Randolph 6-year-old continues recovery from rare illness By Neil Paley, Contributing Writer Recorder Community Newspapers 0 comments
RANDOLPH TWP. - The miracle is almost complete.
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Aidan Saigh, the 6-year-old first grader at the Shongum School, has been back in Suzanne Kessler's class since Nov. 15. And as the days go forward, there's ever less evidence of the Guillian-Barré syndrome that almost took his life on the first day of school, last Sept. 7.
Kim Luthy, Aidan's mother, was just overwhelmed at the support she received from friends and even perfect strangers at a benefit held last Nov. 13 at the Elks Club in the Lake Mohawk section of Sparta, where over 225 people opened their hearts to help out paying the expenses involved in Aidan's hospitalization. ''There were people who showed up who never knew about Aidan,'' said a grateful Luthy.
''He was just happy all these people were reaching out,'' Luthy continued. ''
“A year of tremendous challenges are no match for the power of gratitude. You plan your life a certain way and then life has a way of changing that plan. You focus on your priorities, which for me is my family and providing a life that includes security, love and growth. Sometimes a series of events puts a clog in that plan and you have a choice. A choice to buckle and retreat or to forge ahead and conquer life with passion and gratitude.''
Luthy marveled at the collection of people from different walks of life that became a celebration of Aidan's young life. ''There were bus drivers, a woman at the dog pound,'' she enumerated. ''It became this incredible outreach and concern. People donated their time. From strangers to people that coach in T-ball. Good things happen to good people. We're so grateful.''
Luthy saw acts of graciousness and devotion that she never imagined.''We had plans for doing a silent auction,'' she said, ''We had items donated by different celebrities, business owners and hotels. There was such love and generosity. Aidan was the guest of honor. We didn't know what was going to happen. It was a fabulous, fabulous night. It went from 6 o'clock at night to 2:30 in the morning.''
But it really goes to the kind of person Kim is and the devoted mother she is.
''What I try to teach my kids (her other two children are Taylor and Zack) is when you go through life, you give out one thing and it comes back 10-fold,'' she said. ''Resolutions typically are temporary, but gratitude is permanent.''
Luthy reports that Aidan is currently about 90 percent recovered from the deadly virus and is on the road to walking normally and being able to do anything any 6-year-old takes for granted. It's almost as if Aidan had to start from the beginning and relearn how to use his body.
''He learned how to crawl on Oct. 3 and learned how to walk on Oct. 11,'' Kim said. ''He was talking, but it took him a while to crawl and sit up.
''We had a chart we kept on how he improved from the first day. By the time he left Children's Specialized Hospital in New Brunswick (on Nov. 10), he was running with a walker.''
And Luthy knew it was time when Aidan said he wanted to go home and that he missed his friends and family. ''He went home with a walker,'' Kim continued. ''It was more of an issue of his stamina.''
What remains an issue with Aidan is that the nerves in his feet still have to regenerate, which is the way recovery in the human body works. When Aidan returned to school with a walker, he quickly discarded it. Aidan just wanted to be like his classmates. ''The issue that remains is his feet,'' Kim said, offering that he's still getting therapy.
''It's hard to convince a 6-year-old that he's lucky to be alive,'' Luthy said. ''It has not been without tears or frustration. He wants to be back to normal. He's pushing himself to get to where he was before.''
His doctors, Kim says, are amazed that Aidan was well above the curve in his recovery.
But still, there must be caution, as Aidan still has asthma and allergies and must be extremely cautious in some other areas. ''He can never get a flu shot again,'' Luthy explained, noting that the egg in the vaccination could cause an allegeric reaction. ''We're vigilant and we're concerned. There's a slight chance that it (the syndrome) could reoccur, we have to avoid flu shots. But we don't live in a bubble and you can only do the best you can.''
While Aidan was still a patient at Children's Specialized Hospital, he had many special people wishing him well, including Suzanne Kessler, who brought him some homework assignments. ''She showed up at the hospital a couple of times,'' Luthy said. ''She only had him one day. She's been truly an advocate for Aidan's education. I'm really very pleased with her.''
Over a month after being released from the hospital, Aidan wanted to give something back, so he went back to the hospital to visit the many friends he'd made in his stay there.
''I really felt grateful, because not everyone there gets better,'' Kim said.
After Aidan returned home, Kim noticed that the experience had resulted in maturity beyond his years. "I said to somebody, he's changed,'' she said. ''When something like that happens in your life, you change. I'm hoping the real Aidan shows himself soon. I want to hear him laugh.''
But that young caring 6-year-old may have reappeared quicker than Kim expected. It may have been when a group gave Kim and her family what you might call a faith-based gift instead of holding a holiday party. The gift was a result of that group taking up a collection.
''That's the first time I saw Aidan happy and jovial,'' she said.
''Things like this keep reaffirming our faith in humanity. Destiny is a combination of hard work and luck. If you surround yourself with positive people, how can you fail?''
Kim Luthy offered a special thank you to all that have offered support to Aidan and his family.
''We know all too well that your health is by far the most important factor in all of your plans because without it you are immobilized to implement all that is ahead of you. When Aidan's health turned for the worse in the course of an overnight we forged ahead. We became engulfed in the now and like you've heard took one day at a time. In the course of those days, we would juggle the immediate testing, assessment of the problem and steps to get us to the next day. All along having to maintain our other children's needs, which included the basic care, schooling, supervision, homework and emotional support.”
''All of this would not have been manageable let alone possible without the support of our family, friends and community. You think as you're plugging along in life to do the simple things you learned in Kindergarten such as treat others the way you want to be treated, say please and thank you (as often as you can) and give to others less fortunate at the time whatever their circumstances. You do these because it's what's right.”
''We never imagined the response we would have received when this happened to us would be so tremendous. You know you are loved by those closest to you and you know people greet you with kindness, but you just don't know until something like Aidan's illness to what extent and to what distance you've touched others enough for them to want to help you. Well, if you're 'fortunate' enough to ever have the opportunity, you'll be feeling the gratitude we feel today.”
Tuesday, January 18, 2011
Resolutions are temporary.. Gratitude is permanent
A year of tremendous challenges is no match for the power of gratitude. You plan your life a certain way and then life has a way of changing that plan. You focus on your priorities which for me is my family and providing a life that includes security, love and growth. Sometimes a series of events put a clog in that plan and you have a choice. A choice to buckle and retreat or to forge ahead and conquer life with passion and gratitude.
We know all too well that your health is by far the most important factor in all of your plans because without it you are immobilized to implement all that is ahead of you. When Aidan's health turned for the worse in the course of an overnight we forged ahead. We became engulfed in the now and like you've heard took one day at a time. In the course of those days we would juggle the immediate testing, assessment of the problem and steps to get us to the next day. All along having to maintain our other children’s needs which included the basic care, schooling, supervision, homework and emotional support.
All of this would not have been manageable let alone possible without the support of our family, friends and community. You think as you're plugging along in life to do the simple things you learned in kindergarten such as treat others the way you want to be treated, say please and thank you ( as often as you can) and give to others less fortunate at the time what ever their circumstances. You do these because it's what's right. We never imagined the response we would have received when this happened to us would be so tremendous. You know you are loved by those closest to you and you know people greet you with kindness but you just don't know until something like Aidan's illness to what extent and to what distance you've touched others enough for them to want to help you. Well if you're "fortunate" enough to ever have the opportunity you've be feeling the gratitude we feel today!
The immediate and full force of support was presented in many forms. Bodies of loved ones and friends starting showing up at the hospital. Food was arriving in droves. Cards, texts, emails, phone calls were never ending! Aidan's condition was critical for many days and the information was changing rapidly. My sister Carolyn started a blog which was the life line for many to stay abreast of the changes. It allowed us to filter the information and manage the bedside time. It was so appreciated by us and others that on numerous occasions people commented how informative and grateful they were to be able to know what was going on. So - thank you Carolyn!!!
My family held vigil and supported us by helping to care for our son Zack. They brought clothing to us, meals, basic necessities and even visited with Aidan while we spent time tending to Zack's care in and out of school. Thank you to everyone!! I had family come for a far to deliver blankets to snuggle, diet coke and chocolate to eat and drink and gifts for the kids as not to leave them out or make them feel forgotten as we focused on Aidan. Thank you to all of you! Thank you for the love, support and most importantly your time!
Our offices sent food, visited with true interest in situation and took up collections of money and gifts for the family! Their outreach was fabulous and extremely appreciated. They say in times of need you find out who your true friends are and boy we are blessed!! Thank you to all of you!
The community responded in droves as well. We received gift baskets from previous years Kindergarten classes, current school affiliations, T ball teams, current and prior teachers and classmates, the Randolph bus drivers, the High School support staff and Grounds crew, neighbors, camping friends, STRANGERS, and many many more! It was and is a blessing to have such support. The Morris County Chamber responded with an outreach of support that was never ending. To know you are loved, appreciated, well thought of - call it what you like- it's simply unbelievable that a community can come together and support one of their own! Thank you!
My cousin Jenny in the initial days of Aidan's hospitalization said she wanted to hold a benefit. That she was a member of an Elks Club in Sparta
So you see- as the New Year has arrived I wouldn't be wrong in saying in some ways I am glad 2010 is over. But if it were not for those experiences we wouldn't have the immense gratitude that we feel for what's ahead, for those in our lives, for our health and future! Resolutions are usually temporary but gratitude for us is permanent. Thinking daily about what you have to be grateful for offers strength to forge on- to handle the things life throws at you. We are truly grateful! Thank you!!
Tuesday, December 28, 2010
Merry Christmas, Happy New Year and Happy Holidays to All!
http://www2.snapfish.com/compaq/thumbnailshare/AlbumID=3480904016/a=25902415_7863960/otsc=SHR/otsi=SALBlink/COBRAND_NAME=SNAPFISH/
We hope you have had such a blessed holiday! We did!! We have so much to be grateful for. First and foremost is Aidan's health. Not too long ago he wasn't breathing and we sat day by day praying for his recovery. Our prayers along with all of yours were heard and we were able to celebrate this holiday season with Aidan home. We could not have gotten through these last few months if it were not for your help. The calls, visits, meals, financial contributions, love and support was truly unbelievable! Even today we are still receiving support by means of cards, store gift cards and financial gifts.
On Christmas Eve day Zack, Taylor and Aidan and I were home talking about Christmas. Zack said, " Mom do you think this is going to be the best Christmas ever?" I replied, " I don't see why not Zack we already have so much to be happy about." Then he said, "Mom I want to go on a trip." I said " Me too Zack. Where would you like to go?" He replied, " Disney!" I said, " Me too Zack. Let's start saving and I promise we will make it happen this year sometime!"
Just about 2 hours later the door bell rang and the kids and I went to answer it. It was a woman from the Randolph support staff acting as our Christmas Angel. She explained that they read about our story in the Randolph Reporter and have been following the blog. They along with the BOE Grounds crew decided to forgo their holiday party and make a donation to our family. They thought what greater gift then the gift of cash to a family who has had a rough few months. She came in and we shared her story with Aidan. He opened the card and out fell a lot of cash. Aidan went crazy! He was screaming, smiling , laughing and down right elated. I really can't remember when I saw him so happy. He asked , "How much is it?" I explained it's rude to ask that question but Jenette said to count it. So he did. They generously donated $500. She explained it's for the family to do with want they wanted and it came to us... DISNEY! It's a start. Of coarse the boys have no concept on how much it costs to go so I needed to explain - this is a start. So we put it in the jug and vowed to continue to make contributions to make our trip a reality. Santa came early! The Christmas Angels of the Randolph Support Staff and the BOE Grounds crew made our Christmas a continued stream of gratitude for everything we've received these last few months for all of you!
The above link is from our party on Nov 13th. You do not need to pay anything to set up an account with snap fish so log in and view the great photos courtesy of good friend Pete Mauro.
Thanks again to everyone. We are wealthy with love and gratitude. We have each other and we have you. Thank you! Thank you! Thank you! We wish you all the best always and especially for a terrific 2011.
Aidan is busy with PT, OT a few times a week and continues to make great strides. After 5 weeks of struggle we were successful in obtaining him help in school to catch up on his skills and with PT. He's confidence gets better with his increased successes. He's had to endure more than most would ever in their lives and yet even today he said to me, "Mom why do you think God allowed me to get this virus? Is he just testing me to see if I could handle it?" I said, " God gives us only what we can handle Aidan and he probably knew how strong you were and that you were able to work hard to show yourself you could beat it and return even stronger." I followed with how proud of him I was and how much me and many others love him. He should also be proud of himself!
Stay tuned.. we'll keep you updated. Thanks again and have a Happy and HEALTHY New Year!
Love,
Kim, Taylor, Zack and Aidan
We hope you have had such a blessed holiday! We did!! We have so much to be grateful for. First and foremost is Aidan's health. Not too long ago he wasn't breathing and we sat day by day praying for his recovery. Our prayers along with all of yours were heard and we were able to celebrate this holiday season with Aidan home. We could not have gotten through these last few months if it were not for your help. The calls, visits, meals, financial contributions, love and support was truly unbelievable! Even today we are still receiving support by means of cards, store gift cards and financial gifts.
On Christmas Eve day Zack, Taylor and Aidan and I were home talking about Christmas. Zack said, " Mom do you think this is going to be the best Christmas ever?" I replied, " I don't see why not Zack we already have so much to be happy about." Then he said, "Mom I want to go on a trip." I said " Me too Zack. Where would you like to go?" He replied, " Disney!" I said, " Me too Zack. Let's start saving and I promise we will make it happen this year sometime!"
Just about 2 hours later the door bell rang and the kids and I went to answer it. It was a woman from the Randolph support staff acting as our Christmas Angel. She explained that they read about our story in the Randolph Reporter and have been following the blog. They along with the BOE Grounds crew decided to forgo their holiday party and make a donation to our family. They thought what greater gift then the gift of cash to a family who has had a rough few months. She came in and we shared her story with Aidan. He opened the card and out fell a lot of cash. Aidan went crazy! He was screaming, smiling , laughing and down right elated. I really can't remember when I saw him so happy. He asked , "How much is it?" I explained it's rude to ask that question but Jenette said to count it. So he did. They generously donated $500. She explained it's for the family to do with want they wanted and it came to us... DISNEY! It's a start. Of coarse the boys have no concept on how much it costs to go so I needed to explain - this is a start. So we put it in the jug and vowed to continue to make contributions to make our trip a reality. Santa came early! The Christmas Angels of the Randolph Support Staff and the BOE Grounds crew made our Christmas a continued stream of gratitude for everything we've received these last few months for all of you!
The above link is from our party on Nov 13th. You do not need to pay anything to set up an account with snap fish so log in and view the great photos courtesy of good friend Pete Mauro.
Thanks again to everyone. We are wealthy with love and gratitude. We have each other and we have you. Thank you! Thank you! Thank you! We wish you all the best always and especially for a terrific 2011.
Aidan is busy with PT, OT a few times a week and continues to make great strides. After 5 weeks of struggle we were successful in obtaining him help in school to catch up on his skills and with PT. He's confidence gets better with his increased successes. He's had to endure more than most would ever in their lives and yet even today he said to me, "Mom why do you think God allowed me to get this virus? Is he just testing me to see if I could handle it?" I said, " God gives us only what we can handle Aidan and he probably knew how strong you were and that you were able to work hard to show yourself you could beat it and return even stronger." I followed with how proud of him I was and how much me and many others love him. He should also be proud of himself!
Stay tuned.. we'll keep you updated. Thanks again and have a Happy and HEALTHY New Year!
Love,
Kim, Taylor, Zack and Aidan
Tuesday, November 23, 2010
Truly a time to say thank you to all of you! Happy Thanksgiving!!
Wow, what a fabulous night at the Elks Club on Saturday Nov 13th. I was blown away by the support in attendence- over 200 of you- "Aidan's Angels" showed up to enjoy an evening filled with terrific music, great food, awesome auction and raffle items and undeniable love and support of you all! These last few months the support that we have received has been phenomenal. We have had outreach from neighbors, family, friends, school friends, clients, work friends, the church, chamber friends, tball teams, friends of friends, strangers, classmates and many more. I had the Randolph bus drivers come up to me at the benefit and introduce themselves. They said they heard about our story from someone at the dog pound. I don't even know who there knew or how. Unbelivable!!The Randolph reporter ran an article on Nov 11th about Aidan's story. I will post the link next time. My friend Pete Mauro was kind enough to photograph the evening and I will also post those pictures shortly so check back.
My cousin Jenny had the idea to host such an event on day 2 of ICU. If it wasn't for Jenny's vision this night wouldn't have happened. The Elks so generously donated the facility and my sister Carolyn worked tirelessly on the auction and raffle. My brother Scott got the food donated by his friend Ed Meyer at Sysco Foods and Scott hosted the cooking facility at Mineral Springs Resort and Spa for us( sister Taylor, Scott, friend Everton and myself ) to cook for you. The list goes on and on and hopefully you received our brochure when you checked in at the event with a complete listing of all of our angels. Thank you again to EVERYONE who helped and thank you to you for coming. It meant the world to us. Your prayers were heard and Aidan is on the way up and will soon be back to his normal self.
Aidan started school November 15th and had a challenging week. Remember this has been the longest summer of his life- 5 months. It will take some time to adjust but I know his strength and determination will persevere. He is frustrated with his inability to be running around with the other kids and I think his attention span is a little off considering he hasn't had this kind of time structure in a long time. It's getting better but not with out tears and some negative thoughts. He has had his physical therapy and occupational therapy evaluations and he'll be going to PT 2 x a week and OT 1 x a week for a while. He is encouraged to walk without the walker! We are busy advocating for the resources he needs and is entitled to with the school system. Budgets- Budgets. It appears Aidan is entitled to help within school hours for some PT, OT and likely tutoring. We are awaiting a response requesting a formal evaluation by the school. Pray they do the right thing and give Aidan all he needs to continue accelerate his recovery.
This Thanksgiving more than ever we are grateful for our health, love that surrounds us and our terrific support system. No one can do this on their own. I know this all too well! I am extremely motivated by our experience to pay it forward and help others in their time of need. So my dream to start a foundation for families in transition will soon be a reality. I have recieved advice and support from chamber friends in the area of tax and legal documentaion preparation. The "foundation" is in the works. We're working on the details one of which is the name. "Aidan's Angels" is taken so we'll likely add another word to the title. Stay tuned for details as they unfold.
We wish you and your loved ones a blessed Thanksgiving! Love to all of you!! Thanks again!!!!
Kim
My cousin Jenny had the idea to host such an event on day 2 of ICU. If it wasn't for Jenny's vision this night wouldn't have happened. The Elks so generously donated the facility and my sister Carolyn worked tirelessly on the auction and raffle. My brother Scott got the food donated by his friend Ed Meyer at Sysco Foods and Scott hosted the cooking facility at Mineral Springs Resort and Spa for us( sister Taylor, Scott, friend Everton and myself ) to cook for you. The list goes on and on and hopefully you received our brochure when you checked in at the event with a complete listing of all of our angels. Thank you again to EVERYONE who helped and thank you to you for coming. It meant the world to us. Your prayers were heard and Aidan is on the way up and will soon be back to his normal self.
Aidan started school November 15th and had a challenging week. Remember this has been the longest summer of his life- 5 months. It will take some time to adjust but I know his strength and determination will persevere. He is frustrated with his inability to be running around with the other kids and I think his attention span is a little off considering he hasn't had this kind of time structure in a long time. It's getting better but not with out tears and some negative thoughts. He has had his physical therapy and occupational therapy evaluations and he'll be going to PT 2 x a week and OT 1 x a week for a while. He is encouraged to walk without the walker! We are busy advocating for the resources he needs and is entitled to with the school system. Budgets- Budgets. It appears Aidan is entitled to help within school hours for some PT, OT and likely tutoring. We are awaiting a response requesting a formal evaluation by the school. Pray they do the right thing and give Aidan all he needs to continue accelerate his recovery.
This Thanksgiving more than ever we are grateful for our health, love that surrounds us and our terrific support system. No one can do this on their own. I know this all too well! I am extremely motivated by our experience to pay it forward and help others in their time of need. So my dream to start a foundation for families in transition will soon be a reality. I have recieved advice and support from chamber friends in the area of tax and legal documentaion preparation. The "foundation" is in the works. We're working on the details one of which is the name. "Aidan's Angels" is taken so we'll likely add another word to the title. Stay tuned for details as they unfold.
We wish you and your loved ones a blessed Thanksgiving! Love to all of you!! Thanks again!!!!
Kim
Friday, November 12, 2010
Directions from All Points to the Event and Silent Auction Update
6 West Shore Trail (Lake Mohawk
From NYC
√ via 78W/Holland Tunnel - Rt. 24 W to 287N (about 4 miles from 287) to 80W (11.5 miles) to exit 34B (Jefferson/Sparta) 15N*
√ via 80W/GWB - (35 miles) - to 15N*
√ via Lincoln
From Pocono Mountains
√ Rt. 80E (39 miles) to exit 34 Wharton/Dover/Sparta 15N*
From Morristown Area and South Jersey - see above from NYC – pick up at 287N
√ Pkwy N to 78W 24 W to 287N (about 4 miles from 287) to 80W (11.5 miles) to exit 34B (Jefferson/Sparta) 15N*
√ Tpke N 287N to exit 10 through Morristown
*ONCE ON 15 NORTH
- Go 7.8 miles to the Sparta/Lake Mohawk Business District exit
- Go .3 mile off exit
- Go Right on
Blue Heron Rd. for .2 mile - Continue straight on 181N/Woodport Rd. for 1.6 miles
- Turn Left on
Winona Pkwy for .1 mile - This takes you into the
Lake Mohawk Village Center West Shore - The Elks Club is on the Left next to the Mohawk Country Club (which looks like a castle). Parking on the street or in the gas station/repair shop lot across the street from the Country Club.
Update on Silent Auction
Abbreviated list of all the amazing items that have been generously donated
Autographed footballs, t-shirts, hats from: Coach Lou Holtz, Boomer Esiason, Derek Jeter and Phil Neikro (Knucknsie) and the Jets | Autographed CD’s, posters and other memorabilia from Selena Gomez, Plain White T-s, Atreyu, Miley Cyrus ‘Hannah Montana’, Jesse McCartney, Jonas Brothers, Rascal Flatts, Dakota and Elle Fanning |
Round of Golf for 4 – Trump National Golf Course | Personal Aerial Banner Advertising/Messaging |
Will Preparation and Estate Planning | Neiman Marcus Beauty & Fragrance Basket |
Classic Plane Ride | Andre’s Cooking Classes |
Gift Baskets: Black Label Choppers, Movies, Tea Time, Haircut/Blow-dry from Amici’s, Proctor & Gamble, Massages and The Hair Gallery | Bobby Flay and Paula Deen Gift Baskets and Autographed Merchandise |
Exceptional Flooring Concepts Gift card | VIP Tickets to ‘The View” and Carrot Top in |
Piano Entertainment Package and 6 CD’s. Renowned, Classically trained, Juilliard graduate Rio Clemente is offering 2 hours of private play for a cocktail or holiday party | Broadway Tickets to Wicked and Rock of Ages both packages include $100 Amex Gift Cards |
Black Bear Gym Membership | Customized & Personalized Pilates Mat or Reformer Training |
Goalability Self Development and Vemma Gift Package | Suburban Furniture Gift Card |
Raffling off Gift Cards to: Charley’s Tavern, | Minerals Resort Weekend Getaway and |
$25 per/person at the door • Appetizers, Dinner Buffet & Desserts • Cash Bar • 3 Bands + DJ
Please RSVP to aidansangels04@yahoo.com or via FaceBook http://www.facebook.com/event.php?eid=152892201415932
100% of the proceeds are being donated to the family
Thursday, November 11, 2010
Home Sweet Home! Address and directions for Aidan's benefit.
Aidan finally left Children's Specialized Hospital yesterday! He spent countless hours in therapy working on regaining his strength. By discharge date Aidan was able with close supervision to gingerly jog on the mat for a short distance. He is still best with the walker as it provides the support for him to walk heel toe and learn to use his toes for balance. Aidan invited his team of therapist for lunch on Tuesday for one last hour together as a thank you for their dedication to his health.
Aidan returns to school on Monday and will have the support of an aide until he no longer has "fall precautions". He's excited to get to know his classmates better and visit with old friends. His brother and sister are especially glad he is home as well as the neighborhood kids.
Today on the front page of the Randolph Reporter is an article about "Aidan's story". This weekend we are so happy to celebrate Aidan's progress with a benefit at the Elks Club in Sparta, Lake Mohawak
6 West Shore Trail
Sparta, NJ 07871-1829
(973) 726-0169
DIRECTIONS:
From Randolph, NJ
Take NJ-15 N/W Clinton St
Continue to follow NJ-15 N 1.7 mi
10. Take the ramp onto NJ-15 N 8.4 mi
11. Take the exit toward Sparta/Lake Mohawak/Business District 0.3 mi
12. Turn right at Blue Heron Rd 0.2 mi
13. Continue straight onto NJ-181 N/Woodport Rd 1.6 mi
14. Turn left at Winona Pkwy 0.1 mi
15. Turn right at Co Rd 613 56 ft
16. Take the 1st left
Destination will be on the left 144 ft
6 West Shore Trail, Sparta, NJ 07871-1829
PARKING ACROSS THE STREET AT THE COUNTRY CLUB!
See you there 6 pm - AIDAN WILL BE OUR GUEST OF HONOR!
We will have a raffle and silent Auction - Some awesome items to look for include:
Autographed footballs from Lou Holtz and Boomer Eisason
Tkts to Wicked and Rock of Ages on Broadway
Weekend getaway in Lambertville, NJ - Bed and Breakfast
Autographed items from Dakota Fanning, Miley Cyrus, Plain White T's and more
Round of golf at Trump National Golf Course
Many local restraunts
Personal Aerial Banner advertising
Gifts from Neiman Marcus
Complete Will and Estate Planning analysis and prep
VIP tkts to the View
and much much more!
Aidan returns to school on Monday and will have the support of an aide until he no longer has "fall precautions". He's excited to get to know his classmates better and visit with old friends. His brother and sister are especially glad he is home as well as the neighborhood kids.
Today on the front page of the Randolph Reporter is an article about "Aidan's story". This weekend we are so happy to celebrate Aidan's progress with a benefit at the Elks Club in Sparta, Lake Mohawak
6 West Shore Trail
Sparta, NJ 07871-1829
(973) 726-0169
DIRECTIONS:
From Randolph, NJ
Take NJ-15 N/W Clinton St
Continue to follow NJ-15 N 1.7 mi
10. Take the ramp onto NJ-15 N 8.4 mi
11. Take the exit toward Sparta/Lake Mohawak/Business District 0.3 mi
12. Turn right at Blue Heron Rd 0.2 mi
13. Continue straight onto NJ-181 N/Woodport Rd 1.6 mi
14. Turn left at Winona Pkwy 0.1 mi
15. Turn right at Co Rd 613 56 ft
16. Take the 1st left
Destination will be on the left 144 ft
6 West Shore Trail, Sparta, NJ 07871-1829
PARKING ACROSS THE STREET AT THE COUNTRY CLUB!
See you there 6 pm - AIDAN WILL BE OUR GUEST OF HONOR!
We will have a raffle and silent Auction - Some awesome items to look for include:
Autographed footballs from Lou Holtz and Boomer Eisason
Tkts to Wicked and Rock of Ages on Broadway
Weekend getaway in Lambertville, NJ - Bed and Breakfast
Autographed items from Dakota Fanning, Miley Cyrus, Plain White T's and more
Round of golf at Trump National Golf Course
Many local restraunts
Personal Aerial Banner advertising
Gifts from Neiman Marcus
Complete Will and Estate Planning analysis and prep
VIP tkts to the View
and much much more!
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